I was diagnosed with EDS Hypermobility type in 2013. Since then I've had a very long disappointing journey. I've not only had difficulty dealing with my physical body but getting the right care. I remember how lost I felt the years before my diagnosis and how hopeless it can feel to not be able to find a doctor to help you. It was so hard to find support. I noticed there were no groups for the kentuckiana area on the EDS site so decided to dedicate myself to just that. I have a heart for people. There may be no cure but having a support group helps us to fight those daily battles no one should have to fight alone. I put together the meets, point people to the right care and strive to bring awareness.

I wasn't diagnosed until 2012, after my 3 year old son was diagnosed. Growing up everyone just said I was clumsy and overactive with how often I was injured. I then had an explanation for all my pain and injuries. Once I had a diagnosis I educated myself as much as possible. I am a PTA board member at my son's school. I have used that as a platform to raise awareness by handing out educational pins and ribbons. I have spoken to the school staff about his needs and required special care. My mission for handing out literature was also to educate the parents on the signs and symptom to watch for with this undiagnosed condition. My goal is to provide the knowledge I have acquired from personal experience as well as within the medical community.